
We usually will immediately send at least $50.00 and a supportive letter offering our good thoughts and prayers. We are by no means wealthy and on many occasions could have used this $50.00 or so ourselves. However, we think it is especially important to give even at these times. We look at the abundance and wonderful things in our lives and if someone is less fortunate, they need the $50.00 more than we do.
Please help if you can, even $10.00 can mean alot to a family/individual that needs it.
Calgary Herald, Sunday 13 June 1999
Family hunts for Hannah's cure
Lisa Dempster, Calgary Herald
Her memory of the day is
as cloudless as the fluid
that has transformed her
young daughter's life.
Days after delivering her
sixth child, Jessica
Dolamore was relaxing in
the hospital room next to
her husband, Michael,
watching as a nurse poured
distilled water -- clear and
pure -- into the humidifier
attached to their baby's
isolette incubator.
There wasn't enough water
in the plastic bottle, so the
nurse excused herself to
fetch more. She arrived
back in a few minutes,
chatted some more with
Jessica and Michael, then
opened the second plastic
bottle and drained it into
Hannah's incubator.
This time, it wasn't pure,
clear distilled water, or any
life-giving liquid. It was
formaldehyde.
Seven months after
Hannah's protective
incubator was infused with
the toxic mixture for what
they believe to be about 25
minutes, her family is still
fighting for answers as to
why their beautiful little girl
has been slow to develop,
prone to severe allergic
reactions and hooked up to oxygen for 24 hours a day.
Last Nov. 14, Hannah appeared to be a healthy infant. Born at Foothills
Hospital -- doctors had recommended that she be delivered in Calgary due
to her mother's gestational diabetes -- she emerged into the world at a
pinkish six pounds, five ounces. Hannah was transferred closer to home to
Lethbridge Regional Hospital to be treated for a minor case of jaundice.
On Nov. 19, her tiny belly swollen with the comfort of her mother's warm
milk, Hannah dozed in her isolette at the hospital, as her six-year-old
brother, Paul, reached inside and played with her foot.
Jessica looked on contentedly. The mother of six felt comfortable with the
care she had received at the ......Lethbridge Regional Hospital.
Neither the nurse nor the Dolamores noticed anything wrong as Hannah
slipped into a deep sleep. At 6:40 p.m., just over an hour after they had
arrived, Jessica and Michael bundled up their son and headed for home in
nearby Magrath to fix dinner for the rest of their family. They returned to the
Lethbridge hospital at 8:30 p.m., and Hannah was brought to them wrapped
in a blanket.
But something was wrong.
"We noticed that her head was red," recalls Jessica, "So we unwrapped
her. Her entire body had turned red, and she was just like a limp rag doll."
Jessica tried to dribble a little milk into her baby's mouth, but it came right
back out.
"She was barely breathing . . . we couldn't get her to wake up, we couldn't
get her to latch on to breastfeed. Our baby didn't even move. I was crying,
'what is wrong with my baby . . . is the jaundice so bad that she's like this?'
"
Reassured by the nurses on the ward that they had nothing to worry about,
Jessica and Michael left for home, still feeling uneasy.
When they returned to the hospital the following day, a doctor listened to
Hannah's chest, told them they could take her home, and then revealed
some startling news.
"She explained to me that they had had a small incident in the NICU
(neonatal intensive care unit) where Hanna had been exposed to
formaldehyde," says Jessica. "I was shocked. I was absolutely astounded.
But I was comforted by what they said, that it was a little bit of
formaldehyde for just a short period of time, minutes."
A toxic, foul-smelling gas and suspected carcinogen, formaldehyde is
soluble in water and often used in that form as a disinfectant and
preservative.
The Dolamores now believe Hannah was virtually steeped in the
formaldehyde solution within her isolette for at least 25 minutes before the
error was discovered.
Three days later after Hannah arrived home, her skin began to peel like a
sunburn, and she slowly turned a dusky blue. Within days, she was
admitted to Alberta Children's Hospital in Calgary, and put on oxygen as
doctors tried to discover what was depressing her breathing.
"I couldn't get her to wake up," Jessica remembers. "A normal baby, you
feed them, change them and put them to bed, they'll go to sleep and when
they're tummy bothers them they wake up and cry to be fed. She never did
that.
"We were being told Hannah was fine, but our eyes told us she wasn't."
Officials with the Chinook Health Region, which is responsible for the
hospital, have been quoted in the local media saying they have improved the
labelling of distilled water and chemicals in the wake of the accident.
"The literature suggests that after a single, small exposure, no delayed or
long-term effects are likely to occur," Dr. Paul Hasselback, medical officer
of health for the Chinook Regional Health Authority, said in March.
Today, Hasselback is not willing to speculate. "In terms of legal
implications, we've been advised by our lawyer not to make any comments,"
he said.
Hannah Dolamore looks like a normal baby as she blinks up at a visitor from
her car seat bucket placed on the living room floor. Ignoring the oxygen tube
prongs up her nose, she smiles and attempts to stuff her foot in her mouth.
A pretty baby, certainly. But Hannah is now seven months old, and can't sit
up, roll over, crawl, or reach out to grasp objects. She will not eat solid
foods, and spends her nights in the car bucket because lying flat causes
her breathing problems.
"I know babies can develop at different times, but I also know that by six
months, she should be doing these things. By three months she should be
doing them," said Jessica. "After having five children, I know there are
variations in their progressions, but not like this."
If Hannah is exposed to makeup, deodorant, aftershave, or perfume, or if
she's driving in a car that passes over recent road repairs or follows a diesel
truck, if she comes into contact with certain fabrics, carpeting or paint, her
skin begins to redden, she pants and begins to cry. Afterwards, she is
exhausted, and blank-faced. Yet traditional allergy irritants, such as cats,
eggs and milk, or cut grass, cause her no distress.
Jessica and Michael are convinced that their daughter's chemical
sensitivities and developmental delays are a direct result of the exposure to
the formaldehyde, and they now want to take Hannah to a special
environmental clinic in Colorado to try and find a solution. They have phoned
experts from around the world in their search for answers.
"The doctors have told us they cannot find any recorded incident of this
happening to a child before," she adds. "This is new ground for everyone."
Formaldehyde is used widely in the manufacture of building materials and
numerous household products. A 37 per cent solution, called formalin, is
used to fix and preserve specimens in hospitals. It is this mixture the
Dolamores believe was used in Hannah's isolette.
Scientific studies have shown that formaldehyde has caused cancer in lab
animals, and may also in humans, with the risk dependent on the amount
and duration of exposure.
When present in the air at levels at or above 0.1 parts per millilitre, acute
health effects in adults can occur including watery eyes, burning sensations
in the eyes, nose and throat, nausea, coughing, wheezing, chest tightness,
and skin rashes.
Dr. Peter Singer, deputy chief toxicologist with Alberta Medical Examiner's
Office in Edmonton, agrees cases involving infants and formaldehyde are
virtually unknown.
"There's a lot industrially that has been done on formaldehyde, but I know
nothing that's been done on children," he says.
"There's very little in the literature, nothing you can grab ahold of."
The incident is also under investigation by the Health Facilities Review
Board, an Alberta Health committee led by Warner MLA Ron Hierath.
Alberta Health spokesman Garth Norris said while he can't discuss details
of the Dolamore case, or even confirm an investigation is under way, the
nine-member committee can make recommendations to the hospital facility
or to Health Minister Halvar Jonson.
The Dolamores say they have applied to have Alberta Health help pay for
the out-of-country assessment and any treatment Hannah will need.
Norris says Alberta Health will pay only for proven medical treatments not
available within the province.
The family is now turning to the community for help in raising funds. They're
also hoping to build Hannah an environmentally friendly home made of steel,
glass and ceramic.
But they are a long way from their goal. The family of eight lives in Magrath,
about 30 kilometres west of Lethbridge, in a small rented bungalow which
has recently been put up for sale by its owner.
Their lives have been changed dramatically since the accident at the
Lethbridge hospital. Every dollar is scrounged, and Jessica sells hand-made
soap to make ends meet.
Michael Dolamore, who sorts and packs wool for the Canadian Wool
Growers Co-op, says stress has made it difficult for him to focus on his job.
"And at home . . . we struggle," he admits. "It just seems like the whole
weight of the world is on us. We're totally inexperienced with the problems
that Hannah is facing, and quite honestly, so are the doctors in Canada."
The Dolamores, members of the Church of Jesus Christ of Latter-Day
Saints, have relied on their Mormon faith and friends, but realize the next
step may take a miracle.
A fund-raising auction set for June 26 at the Lethbridge Exhibition grounds
promises to be a start. After Jessica mounted an international letter and
phone campaign, several major-league sports teams donated autographed
items, including a Wayne Gretzky hockey stick, jerseys from the Toronto
Maple Leafs and the Utah Jazz and a valuable World Series baseball.
"It's amazing what Jessica has done," marvels Chris Sadleir, promotions
director for Country 95.5 in Lethbridge which is helping co-ordinate the
auction. "She's a very quiet lady from Southern Alberta who is making
waves all over the world."
And perhaps, very soon, in court. A Calgary lawyer has confirmed he will be
acting for the family as they pursue a lawsuit. "The legal area will take
years," says Jessica Dolamore. "But Hannah needs our help right now."
To bid on items in the auction or make a donation, call (403) 758-6282.
**
A note to this tragic story. I spoke with Jessica Dolamore today (July 20, 1999) to ask permission to post her address on my site. I have to say that it was enlightening to speak to this wonderful women. I can't imagine caring for 6 children and dealing with this tragedy. Aside from coping/dealing, Jessica and her husband are fighting a battle with the hospitals who have claimed no responsibility in the matter. They feel they must fight for all the healthy children, so that they remain that way.
Ironically, this horrific event forced the Dolamares to evaluate their environment. They are now big believers in organic products, as well as Essential Oils.
Please send whatever you can AND your prayers to Hannah, her parents and her siblings.
(US dollars appreciated)
Tell them Lauren McGinley sent you.
With love, Please check back soon. A story about a young boy kept in a cage for two years is what I'm working on now.
Jessica and Michael Dolamore
C/O Hannah's Hope Trust Fund (make your check out to this)
General Delivery
Magrath, Alberta
Canada T0K1J0
Lauren McGinley